Hello, Friends!We thought it would be a good idea to share with you what we are all about.
As you've probably read on our website, Luke's story is an important story to tell. It has been about a year since Luke was first diagnosed with a bulging dilated aortic root (aneurysm at his aorta), & he is still being monitored to find out the cause of the aneurysm.
Luke is currently being treated by the Johns Hopkins Comprehensive Marfan Center in Baltimore, MD. They have a great website with resources about Luke's condition and connective tissue disorders such as the Marfan Syndrome.
Feel free to check out the links below to learn more about why it is so important to us at The Luke Pier Foundation to raise money for research to help prolong Luke's life and the lives of others affected by connective tissue disorders!
If you want to do more to help us with our mission, please view our website for ways you can help!
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Hi,
ReplyDeleteMy name is Mary. I tried to email you about my daughter, who also has Marfan syndrome. Thank you for putting this foundation together. It is a wonderful service. May God bless you and Luke!