8.08.2008

How Prepared Are You?

We here at The Luke Pier Foundation subscribe to the updates sent by The National Marfan Foundation. Often, the updates are regarding specific drug therapies or research pertaining to the Marfan Syndrome which Luke has not been diagnosed with. This update in particular is important for any of our readers, though.

Connective tissue disorders and the potential aortic aneurysms present themselves in ways other than just the Marfan Syndrome. The following information is very important for those who specifically want to learn more about aortic dissections or have family members who have this condition. The information is important for health care providers, patients and family members alike.

Click on the following links to learn more (information provided by NMF):
  1. Emergency Situations Main Page - this page contains a wonderful amount of information, summarized in an easily understandable format
  2. Emergency Information Packet - this packet will help guide you through all the steps of emergency preparedness in the event of an aortic dissection. It even includes a printable aortic aneurysm medical alert card that you can give to the emergency room attendant or EMS!
  3. Hospital Interview Information - this contains questions to ask your local hospital to ensure that they are equipped to help in the event of an aortic emergency
  4. Emergency Diagnosis & Treatment of Aortic Dissection - this is an online booklet that has very helpful Q&A's about how aortic aneurysms and dissections are diagnosed
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